Fibromyalgia And Difficulty Speaking

Fibromyalgia is a disease that has many symptoms and some of them can be confusing for people. So in case, you were thinking that it only affects the energy levels of the body and that the only problem is muscle and tissue pain, you were wrong.

This kind of disease can affect almost any aspect of a person’s life and it is time we educate ourselves on it and give more understanding to people who suffer from it.

The first symptoms that usually come to mind are exhaustion and pain in every muscle, but these are not the only symptoms of fibromyalgia.

Fibromyalgia is different for each patient who suffers from it and it affects every person in some different way. For example, daytime fatigue and exhaustion will be a major problem for a person who has an interrupted sleep cycle and has fibromyalgia as well.

And this will usually result in depression and increased muscle pain. But just because this is the most common symptom of this disease does not mean that it is the only one we should look at and consider.

There are numerous others that a person who suffers from fibromyalgia battles with every day. Most of the time there are all intertwined with one another and affect each other.

So with that line of thought if there is a way to help with one symptom it will result in helping with the others as well.

Fibromyalgia often leaves the person feeling fatigued and mentally confused. Many patients claim that it feels as if they have a fog setting over their brains.

From 50 to 70 percent of the patients have chronic headaches and migraines, and they happen at least two times per week.

Imagine living a normal life with that kind of condition. This leaves the patient exhausted on a physical as well on a mental level.

One of the symptoms that may have been overlooked is difficulty in speaking when you have fibromyalgia.

Having trouble with language and having trouble speaking can be very irritating and frustrating, especially when we live in a modern society where you are in a constant need to communicate your thought clearly and where you are constantly surrounded by other people who expect you to speak with ease and clarity.

Before your doctor diagnoses difficulty in speaking to fibromyalgia, it should be checked that there are no underlying issues with the throat, the ears, or the nose.

The nerve receptors of the person who suffers from fibromyalgia can get overwhelmed by the number of information as the pain receptors are constantly being bombarded by information.

The pain signals are constant and too many stimuli from different sources can confuse the brain and lead to speech problems.

People suffering from fibromyalgia find it a common problem to speak clear thoughts or remember certain words sometimes. It may even result in trouble with writing or understanding language.

Researches are not yet sure why exactly fibromyalgia causes these language problems because dysphasia and aphasia are linked to brain injury or degeneration, such as when suffering from a stroke.

And for now, there is no evidence that fibromyalgia can cause brain tissue damage or degeneration.

We may hope that in time some link between the two will be discovered and that a cure will be found, but before that, we must think of ways to make life easier for a person who suffers from fibromyalgia.

People who suffer from the disease claim that in most cases the more tired and exhausted they are the more difficult to speak it gets for them.

They find themselves searching for the right word and it simply doesnโ€™t come to mind. Or the person finds themselves with saying a word that has no correlation with the conversion or their train of thought.

This is something that can be very frustrating when it first starts happening and it is good to find a coping mechanism to help.

It is important not to stress too much about it as stress leads to less sleep and more fatigue and exhaustion.

Try to keep a positive outlook on the whole problem and not blame yourself when it happens. Give yourself a couple of seconds, laugh at it if you can, and then move on.

Some days this will not happen and on some days it will but there are ways you can help yourself.

If you find that the more rested you are the rearer the happens then try to find ways to get a night of better and more regular sleep.

Make a plan of going to bed each night at the same time and get up in the morning at the same time and see if this gives you more energy.

Or if you find that it is easier for you to write than to speak for a time then communicate with the people via text or email for a while. Whichever way you find of getting yourself relief is a good way.

Because speech difficulties can be very frustrating. They can be unpredictable and people who donโ€™t know you can get confused and impatient.

So make sure that you explain to people that this is a symptom of a disease that you cannot control and that it does not define who you are as a person. And say this to yourself as well.

We just saw that fibromyalgia has many symptoms and that affects almost every aspect of a person’s life. But it is a disease that can be fought against and the patient’s condition can improve over time.

Considering how all the symptoms are linked together speech trouble and language difficulty can result in more stress, anxiety, and exhaustion if you donโ€™t know how to help yourself. So find little ways every day to make yourself feel better if you can.

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  1. this is great that its a symptom i usually find that finding the right word and then to try and say it at the same time sometimes really frustrating ๐Ÿ™ also is it linked with this other scarey thing that happens to me is that when im eating or trying to drink or even take a small tablet i cant remember how to swollow my brain just wont let me? i have to really concentrate or get rid of it and try start again , im getting this more and more

    • Beth Cornish

      You are not alone I this I also find that now and again its as if I forget how to swallow there have been a few times where I’ve burnt my throat due to having hot liquid stuck in my throat and you do get a fright with this

    • Oh gosh this happens to me too and sometimes I cant even swollow my own saliva..

    • Brandy Johnson

      It’s so nice to know there are others having difficulty with the swallowing too! It’s like when I get the pills in my mouth I can’t figure out how to swallow and they start melting, it’s terrible! I never understood why this happened but thanks for making me feel not so alone. ๐Ÿ˜Š

    • Oh my goodness, thank you thank you thank you!!! This is me to the “T”!! My mind is completely blank. The only thing working are involuntary systems. I also get involuntary spasms in my tongue. At first, it was funny to have water suddenly shoot out of my mouth, not funny at all out in public. This isn’t my body anymore and I don’t enjoy this at all. I told my doctors, they’re unconcerned as I sit there twitching drooling out one side and crying. I guess we’re ***** normal โ™€โ€๐Ÿคท๐Ÿป
      ๐Ÿ˜‚๐Ÿคฃ๐Ÿ˜‚๐Ÿคฃ God Bless you ๐ŸŒบ๐ŸŒผ๐Ÿ€๐ŸŒบ๐ŸŒผ๐Ÿ€

  2. Natosha Frost

    I have began to have my speech come out slow like I have a speech impediment, and on top of that lose words. Very difficult to deal with and impossible to work. Even more so when I’m in alot of pain. I have good days and bad. More bad than good anymore.

    • Deborah Mayes

      I have got a similar problem in that I know what I am trying to say but it seems to come out slowly like my brain and my mouth are not synced together. I know I am doing it but can’t seem to help it.

      • I started having that happen to me didn’t understand what was going on, now I understand. It happens when I am having a rough day and night, sleep is very hard. In the morning I see it happening.

  3. For me its embarrassing and exhausting. I’m reasonably intelligent and have an above average vocabulary. So, when I can’t access an everyday word like “knife”, it drives me crazy. I know what it is, I know the name. I can talk my way around it “the thing you use to slice tomatoes.” But I can’t seem to get the word to come out of my mouth. It’s definitely related to Fibro fog and how good or bad I’m feeling on any given day. It’s not typically so bad in front of family, but I constantly think about how embarrassing it is when it happens in front of other people. I’d love to know why it happens.

    • karen anderson

      Karen – My name is Karen too and I have the same problem! It is so embarrassing and I feel your frustration! What can we do about it?

    • Exactly, we don’t want people thinking we are full of pills or something, sometime the word is there and it just won’t come out or I say the wrong word, I often look to my husband to finish the sentence or say the word for me, ughhh agrivating at the least….

  4. Have issues swallowing not just tablets , food too ! I forget totally what something is and just say ..oh you know the thingamebob. ..I get stressed that people don’t know what I’m on about , but I know . It is worse the more tired I am ….fibro is secondary to the A.S , I also suffer from . Debilitating and frustrating! !

  5. I have the same problem with speech and swallowing,sometimes I choke on my Vitamins in the morning,or I feel my self holding them in my mouth until I can get my brain or my throat to work. I have IC too,sometimes when I need to pee,and with IC that’s about every hour,I can’t go.I can’t get the message down to my bladder. I recently I had a stroke,I didn’t even realize that what it was because I have all these problems will my fibromyalgia. I have vision problems too. Lights flashing in one eye or another.Blurry vision that comes and goes.So many different things it hard to tell what my fibromyalgia and what’s something else.I have to go get an MRI,I”m not convinced that I had stroke yet.I didn’t get dizzy or black out. Just a little blurry vision for a second,then I was having difficulty speak,it was very bad my words were so slurred .I couldn’t get my tongue to work,it felt like when my fibromyalgia is acting up,I couldn’t tell the difference. The doctor was up set with me ,telling me I should have gone to the ER,I told him how am I supposed to tell the difference.I even have problems with my balance.

  6. Have you tried Feverfew capsules for the difficulty speaking?

  7. Paula Sewell

    I live daily with total brain fog. Dont ask me what i did yesterday, nor last week. I can remember doing things but not when, what day, or time it was…. I get total memory loss when conversations are being had, I know that I have the knowledge and information but cant remember what it is to say it. I start to speak with a suggestion (example) and I cant give the information. I cant remember names, places, events, movies titles, and forget appointments. I am good with numbers, I can remember my bank account details my lisence number and some phone numbers. Dont know why I can be so good with numbers but not anything else….. is very frustrating and I try to apologise in advance and at the time to people and explain that I have issues remembering things. People normally tell me that I am stressed and to chill… but I am chilled and not stressed, just embarrassed and frustrated that I cant pass on the information that I would like to. I am stimulated to speak but the memory of what I want to say is not there….

    • Hi I’m the same didn’t know which colour toothbrush was mine and tried to use my daughters laptop in the screen n wondered why didn’t work it’s awfull

      • Mary Hepburn

        I too am relieved to discover that these are regular symptoms of Fibromyalgia. I teach in a College and every year I explain to my students that it is part of an illness I have. I find that if I give the students warning they are receptive to it. Using the words of a fellow sufferer I also tell my students that although I have this disease ……It does not define me!

  8. Brain fog can be a symptom of many diseases and disorders, some serious and others fatal. A doctor should do a barrage of tests to eliminate vascular events and dangerous metabolic or neurological disorders before he/she settles on Fibromyalgia as a diagnosis. I was misdiagnosed with Fibromyalgia many years ago, but responded very negatively to the traditional drug therapy. I nearly died before I was correctly diagnosed with pernicious anemia and was prescribed vitamin B-12 injections without which I cannot survive.

  9. This is very good information, one I haven’t seen any thing about this .I have it all I have a hard time talking right.And my skin is driving me more nuts.It all hits me! Thank you I’m feeling not very good just went in surg.and Dr.s put block in neck to help pain and problems! Been one day so far ok! Prayers

  10. Thingymebob and whatsit and the thingy you know? Seem to be my go to words when I am struggling.. My daughters and husband now understand me and ge really get what I mean but unfortunately not everybody does and finds it quite odd.

  11. Deborah Birch

    Can we stop calling it a disease it a condition , we are born we it can be from birth or take it time to show itself .This condition can cross over with Elhers Danlos was well , so let start to understand why I know this I have been looking into this since I was 10 years after 8 years of dislocations , smallpox is a disease , Ebola in a very nasty disease but they can be cured of caught in time , flu , cold etc are viruses .
    Because a condition can only be managed with medicine that’s why I am still fighting against people who wrote these informational items calling it a disease makes me very disheartened that still people do not understand the condition .
    So can we all start to understand there is no cure as yet !! To this condition So we have to support each other with this condition and explain to people why it is not a disease more than anything .

  12. Cheryl Zaic

    I’m so glad to know that I’m not the only one with so many of these problems. I have fibromyalgia, osteoarthritis, no cartilage in my knees, one of which has already been replaced, and the other is due to be replaced soon, and several other problems too numerous to list here. It’s good to know I’m not losing my mind in my old age! (I’ll be 76 soon)

  13. I used to speak to colleagues about the thingymajig needs the wotsit fixing by whatshername…

    They always knew what I meant, I’m certainly not stupid, but I do remember having a conversation with a Senior Board Member and he did look at me as if to say ‘How did we employ this person’. Thankfully not everyone is like that, although it does make it hard to get a job.
    I’m nowhere near as bad as I was since I used Alpha-Stim – but Fybromyalgia is a hidden disability, and the more awareness there is about the symptoms, the fewer stress sufferers have and that greatly lessens the symptoms.
    You certainly need a sense of humor if you have FMS!

  14. I was diagnosed with Fibromyalgia in 1994 at the age of 29. I had just married a wonderful man, who loved my two boys! I love his identical twin girls and his son! We made a great blended family because the kids were so young & close in age. We had the best time living in the mountains in California! But then i got sick! I had a tumor behind my uterus and had to have a hysterectomy. About four months after my surgery I was in pain all the time and i couldn’t sleep so i was tired all the time. I went down the mountain to my doctor who referred me to a specialist. He had written a paper on this condition called fibromyalgia and i fit the mold completely. That day change my life forever!!! I am now 55 and on oxygen 24/7 because i have chronic respiratory failure and sleep apnea, plus i have arthritis. I am a shell of the person i use to be. Everyday is a struggle!! I also have problems with my speech. I am trying to not let this define me, but when you have machines
    every where that becomes your focus. I hope some day they find a cure for fibromyalgia!! Sorry if i shared too much. Bless you all!!

    • I just turned 40 last month. Fibromyalgia has set in slowly since February of 2016. The last two years have been a drastic downhill slope. I feel like I am a stranger to my own body. It even sounds ridiculous. Praying for a cure. This is no way to live.

  15. When I can’t remember the name of the item I’m trying to say, it comes out in the language spoken in my birth home. I haven’t spoken it in decades, but that’s what comes out. I get some very strange looks and then I realize what I’ve done.

  16. This is great information for those who are trying to understand our disease. I have a very hard time with speech and also stutter at times because I canโ€™t find the words.
    I often wonder if all the symptoms will lead us to dementia or Alzheimerโ€™s?

  17. Ellen Comstock

    I have been having trouble with my words, but never connected it with fibromyalgia. I also increasingly transpose letters and numbers. I thought I was maybe starting to get dementia. I am 68 years old and have had fibromyalgia for over 30 years.

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